Tuesday, May 18, 2010

May 18, 2010 joycepsouth

Had a long visit with mom this afternoon.  Aunt Libby is visiting and we rode to Athens together.  Aunt Libby is doing well.  She was so glad to see  mom feeling and looking so much better.

Mom had a great day.  Worked hard in therapy walked further than she had walked in a long while.  Had a list of things to bring to her, including a pen for her puzzle books.  She had lots of company which she enjoyed.   Soooo needless to say by the time we were leaving she was worn out!  A good worn our thankfully—

The down side of today was that she had ostomy trouble, or in my opinion her nurse did not know how to seal the ostomy.  They have changed it four times to day and it keeps leaking.  I watched the third and fourth changes and realized that the day nurse (in my humble opinion) had not been trained like the nurses in the hospital trained me — so I feel it might be more the application process rather than the ostomy.  Hopefully this last one will stay with no difficulty.

School is winding down and I hope we will be able to get mom home soon.  I know she is ready, but trying to be patient while getting stronger.  She is enjoying her assistant and we are so thankful that we have found a caring person to share the day with mom.  Mom decided and we agreed that having a companion during the day has been great for mom.

Have a great Wednesday!

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Entry Filed under: Mom's Progress

7 Comments Add your own

  • 1. Jane Cumby  |  May 19, 2010 at 11:12 am

    This is good news. You are a good reporter.

  • 2. Claire DeLand  |  May 19, 2010 at 3:37 pm

    I agree, Joyce. It’s the application process and NOT the bag or the ostomy itself.

    She could be losing some weight and her contour changing a bit as well.

    Go with what you learned from the Ostomy nurse in the HOSPITAL!!! I’ll ask Terry if he has any suggestions (if he remembers anything) because I had NOTHING but trouble getting the bag to seal properly – – – the whole time I had it – – – and it would just fall off . . .

    Let me know if we can help – – – I still want to get some Calmoseptine to you . . .

    I gather she’s more able to have some company than she was, so I’d like to come see her. What kind of puzzles does she like best? I don’t want to come empty-handed. 🙂

    Love you guys – – -I’m SO glad the blog is here. I feel so much more connected!!!

    I gave the URL to Wendy (my best friend – – – she’s my flute/Christmas music buddy too . . . she may have some suggestions. Her son has a J-Pouch – – – had his entire colon removed when he was 22 (I think?) and she knows a lot about a lot of things!!

    Scott, by the way, is doing great without a whole colon – – – better than he was with it!!!

    See you soon!!!!

    • 3. joycepsouth  |  May 21, 2010 at 9:17 pm

      Thanks again -always love to hear from you. Your advice and well wishes are always appreciated. Mom likes jigsaw and suduko puzzles. Have great weekend.

  • 4. Sally Oakes  |  May 19, 2010 at 4:08 pm

    Claire told me your mom wasn’t doing well and gave me the link to this blog. Know that I’m praying for you all. Glad she had a good day today. Give her our love!

    • 5. joycepsouth  |  May 21, 2010 at 9:21 pm

      Thanks so much Sally for the well wishes. It is so good to hear from you. Can’t wait to tell mom you got in touch. She is much much better. Think she might be on the right road now.

  • 6. sweetmeow  |  May 21, 2010 at 2:20 pm

    Hi Joyce. Let me introduce myself. I’m Wendy Enstine, Claire DeLand’s friend – the one that plays the flute with her! I have a blog on wordpress, too — but it’s more “fluff” – and nothing as informative and important as this.

    Claire directed me here, as I have a little understanding of ostomies as my son, Scott had one for about 3 months between his surgery to remove his colon and to reconnect his J-Pouch, which was formed during his first surgery form his small intestine. This was back in 2003/04, so it has been a long time for me. So — I improvements have been made since then.

    However, one thing I did learn about the appliance and it adhering to the skin was NOT to use a soap like Dove, which has moisturizing cream in it. We were on vacation – and appliance after appliance would leak and we began to panic – until we called our ostomy nurse contact back home, and we figured out the problem. The best thing, however, is to become “best friends” with your ostomy nurse! And — for burning, irritated skin – Calmoseptine is the very best (but not for under the Ostomy appliance!)

    Claire loves Ruth and they go back a long way. She’s been very concerned, and as Claire’s best friend – I care very much, too. I hope you don’t mind that I read here, too, and will offer any insight that I might have.

    • 7. joycepsouth  |  May 21, 2010 at 9:15 pm

      Thanks so much for the well wishes. Mom is always asking Claire about you. I will certainly pass this information along as well as trying to remember to make sure all of her moisturizing soap is put away. Thanks again –


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